{"id":1064,"date":"2018-06-19T19:51:39","date_gmt":"2018-06-19T19:51:39","guid":{"rendered":"http:\/\/wakinguprevolution.com\/?p=1064"},"modified":"2018-06-19T19:51:39","modified_gmt":"2018-06-19T19:51:39","slug":"love-and-happiness-for-you","status":"publish","type":"post","link":"http:\/\/tatianacameron.com\/dev\/love-and-happiness-for-you\/","title":{"rendered":"Love and Happiness for You"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.47&#8243;][et_pb_row _builder_version=&#8221;3.0.47&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243;][et_pb_divider show_divider=&#8221;on&#8221; _builder_version=&#8221;3.0.98&#8243; \/][et_pb_text _builder_version=&#8221;3.0.98&#8243; text_font_size=&#8221;16px&#8221; background_layout=&#8221;light&#8221;]<\/p>\n<div id=\"content\" class=\"content__main\">\n<div id=\"post-5732\" class=\"single-post post-5732 post type-post status-publish format-standard has-post-thumbnail hentry category-my-journal\">\n<div class=\"entry\">\n<p><span style=\"color: #000000;\">I recently flew to Washington, D.C. to give a presentation at a Croatian Embassy event organized by the Croatian Association for Patient\u2019s Rights. Their president, Jasna, invited me to speak about my experience over the past year concerning patients\u2019 rights in the U.S. &#8211; through my dad\u2019s and my husband\u2019s battle with cancer (my dad was treated in Croatia and Matthew in the U.S.).<\/span><\/p>\n<p><span style=\"color: #000000;\">Because Croatia belongs to the European Union, its medical field is required to address patients\u2019 rights and, more importantly, educate doctors and nurses about it.<\/span><\/p>\n<p><span style=\"color: #000000;\">There were three other female presenters, all three medical specialists, who gave very informative and educational talks on the subject. My job was to give a personal account on different aspects of patients\u2019 rights: ranging from access to information, to decisions to be made about treatment, to the right to receive medical care, and to privacy and the end- of-life decision. (This is exactly what I do &#8211; as an artist, I take the scientific and practical and put it into music or experiential form &#8211; which engages people on an emotional level and allows them to more deeply absorb the information.)<\/span><\/p>\n<p><span style=\"color: #000000;\">I had a lot of good experiences to share, but also some horrific ones &#8211; almost all of which involved the business side of profit-driven health insurances.<br \/>\n<\/span><a href=\"http:\/\/wakinguprevolution.com\/wp-content\/uploads\/2018\/06\/IMG_0063.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-1146 \" src=\"http:\/\/wakinguprevolution.com\/wp-content\/uploads\/2018\/06\/IMG_0063-1024x768.jpg\" alt=\"\" width=\"720\" height=\"540\" srcset=\"http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-1024x768.jpg 1024w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-300x225.jpg 300w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-768x576.jpg 768w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-1536x1152.jpg 1536w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-2048x1536.jpg 2048w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-510x382.jpg 510w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-1080x810.jpg 1080w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-1280x960.jpg 1280w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-980x735.jpg 980w, http:\/\/tatianacameron.com\/dev\/wp-content\/uploads\/2018\/06\/IMG_0063-480x360.jpg 480w\" sizes=\"auto, (max-width: 720px) 100vw, 720px\" \/><\/a><\/p>\n<h2><span style=\"color: #000000;\">In the end, I said that what made all the difference,<br \/>\nand which could not be written in as a regulation,<br \/>\nwas the humanity of how my husband was treated. <\/span><\/h2>\n<p><span style=\"color: #000000;\">This included the kind words of encouragement that his doctors had for him (even when they couldn\u2019t promise success), the touch on the shoulder or squeeze of his arm, the tears in his oncologist\u2019s eyes when she said the trial did not work, or when she told our kids that their dad was truly a hero\u2026 they dubbed him \u201cCaptain America.\u201d<\/span><\/p>\n<p><span style=\"color: #000000;\">Systems are always going to be flawed and incomplete. but loving and caring for another human being without judgment or discrimination However, this cannot be written into a legal document.\u00a0<\/span><strong><span style=\"color: #000000;\">Love, compassion, prayers and support of those who loved him was what brought dignity to my husband and healing to our sons and me, even when medicine failed.<\/span><\/strong><\/p>\n<p><span style=\"color: #000000;\">As I said this during my presentation, I looked at the women scientists.<\/span><\/p>\n<p><span style=\"color: #000000;\">All three nodded their heads in confirmation.<\/span><\/p>\n<p><span style=\"color: #000000;\">At the end of the event, I sang for them. I asked if they were going to add a right to music to patient\u2019s rights, half-jokingly. They agreed that music played a huge part in patients\u2019 treatments.<\/span><\/p>\n<p><strong><span style=\"color: #000000;\">Ask yourself, \u201cHow can I \u2018affect the system\u2019 by extending love, kindness, or emotional or physical support to someone?\u201d<\/span><\/strong><\/p>\n<\/div>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row background_color=&#8221;rgba(0,0,0,0.1)&#8221; _builder_version=&#8221;3.0.98&#8243;][et_pb_column type=&#8221;4_4&#8243;][et_pb_text admin_label=&#8221;connect with me&#8221; _builder_version=&#8221;3.0.98&#8243;]<\/p>\n<p style=\"text-align: center;\"><strong>CONNECT WITH ME<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;3.0.98&#8243; text_orientation=&#8221;center&#8221; custom_margin=&#8221;|||370px&#8221;][et_social_follow icon_style=&#8221;flip&#8221; icon_shape=&#8221;rounded&#8221; icons_location=&#8221;top&#8221; col_number=&#8221;auto&#8221; outer_color=&#8221;dark&#8221;][\/et_pb_code][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;3.0.98&#8243;][et_pb_column type=&#8221;4_4&#8243;][et_pb_code _builder_version=&#8221;3.0.98&#8243;][inf_infusionsoft_inline optin_id=&#8221;optin_5&#8243;][\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; _builder_version=&#8221;3.0.47&#8243;][et_pb_row _builder_version=&#8221;3.0.47&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221;][et_pb_column type=&#8221;4_4&#8243;][et_pb_divider show_divider=&#8221;on&#8221; _builder_version=&#8221;3.0.98&#8243; \/][et_pb_text _builder_version=&#8221;3.0.98&#8243; text_font_size=&#8221;16px&#8221; background_layout=&#8221;light&#8221;] I recently flew to Washington, D.C. to give a presentation at a Croatian Embassy event organized by the Croatian Association for Patient\u2019s Rights. Their president, Jasna, invited me to speak about my experience over the past year concerning patients\u2019 rights in [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":1145,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[11],"tags":[],"class_list":["post-1064","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"_links":{"self":[{"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/posts\/1064","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/comments?post=1064"}],"version-history":[{"count":0,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/posts\/1064\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/media\/1145"}],"wp:attachment":[{"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/media?parent=1064"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/categories?post=1064"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/tatianacameron.com\/dev\/wp-json\/wp\/v2\/tags?post=1064"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}